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ALS FAQ 2021 (LBR)

This FAQ is compilation (Frequently Asked Questions) of the latest information on ALS as gathered during independent research and analysis of available sources like scientific papers and works of independent writers including books. The goal is to provide more encouraging information because such information & data already exist. God bless all who contribute – not with money but with real interest in things, helping to spread hope & information and mainly trully supporting the patients in terms of their courage, morale and belief.

Questions in below section basically reflect the official state of things as of date of writing (I will try to keep it updated). Since there has not been any any real progress in the last few decades from patient point I instruct reader to only fly through this section and what is most important – do not take this information too seriously. It is just not good to accept this state from many reasons. Especially if you ended on this website because you are seeking for helpful information. It could give you a false impression there is nothing to do but waiting on what ALS researchers provide. So I repeat, under any circumstances do not let this to kill your interest, courage and hope. You can validate the information by going through all those ALS related web sites. The bottom line is simple – this official medical authorities have nothing for ALS people in terms of cure. There is no real hope, there is no breakthrough despite the occasional bombastic news titles. One also has to count that progress announced will take rather years to make its way to the patients (not handful of chosen ones, but all of them!). This is how the system works – extreme costs, slow progress, slow adoption, multiple clinical tests, carefuly designed monetization options and poor results at the end. Whole generations of patients died and are still dying – the only difference is they have better tools and computers.

ALS FAQ 2021 - Official

Official statements on ALS with comments included.

What is ALS?
ALS means amyotrophic lateral sclerosis which is a disease of nervous system causing its progressive degeneration (neurodegenerative disease). There are many diseases affecting human nervous system but ALS is affecting central nervous system (CNS; brain & spinal cord) and specificaly the motoric centres or motor neurons residing there. This results in gradual impairment and loss of all motoric functions in the affected person. Motor neurons (connected with muscles) provide humans not only movement but also breathing. This is why overall paralysis is followed with difficulties to breath and ultimately leads to death. More introductory details including links is in my ALS 101 post.

Comment

Please go through all other questions as above information indeed is not really optimistic – but there is source of optimism!   

Equivalent questions:

  • What is Lou Gehrig disease?
  • What is MND?
  • What is motor neuron disease?
 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  
What causes ALS?

This is simple question on very hard and complex problem. Official authorities claim they do not know – and mention risk factors, genetics, environment in the same way as with any other serious health condition (cancer, ALS, MS, GBS etc.).

Comment

Please go through all other questions and ideally all sections and then if you are really interested – through the whole website and articles referred. I hope the response will evolve in your mind – it most likely will be a bit weakly represented and you will doubt and ask yourself again, then doubt again and so on. Perhaps at the end you will join me and help the world a bit with this project.

 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  

 

What forms of ALS are known?

Science distinguishes three forms of ALS. One is so called familial form (F-ALS) which is believed it is inherited due to identification of several suspected genes (gene mutations observed). This is further supported with the fact the disease sometimes occurs in family tree repeatedly. This form makes 5-10% of all cases. The second form is sporadic ALS (S-ALS) which makes practically the remaining 90-95% of all cases. It is called sporadic because there is no known link with genetic profile and it can develop in practically anyone in any age.  Third form is Guam form because there was heightened incidence of ALS on a small pacific island Guam.

Comment

Please do not automatically believe in this classification. It is only a result of human created classification and interpretation of certain facts. In theory there can be only one form (that would be sporadic ALS) which develops as a result of environmental effects. However these environmental factors can affect people often in slower gradual way and thus making humans more vulnerable or genetically predisposed or more prone in facing that not exactly confirmed combination of environmental factors (toxicity, microbial aspects, lifestyle, condition of the organism). It is premature to give anyone bad news in form of “genetic course”. Do not forget the disease is not understood at all and thus any hard claims including these harming should be wisely considered.

 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  

 

What treatments exist for ALS?

Unfortunately there is no known and real or effective treatment. The word treatment means something – something which makes the person to get better and gradually recover. However as per latest official information there is nothing like that for ALS yet and all the attempts are unsuccessful. The official authorities claim there are treatment options in the form of drugs. At best there are drugs with side effects which seem they can very slightly slow down the progression. The application of statistical methods to measure the effects of these drugs can be also questioned because of the great and unpredictable differences among all the patients . Stop for a while and ask yourself if you would call little bit slower dying with all the negatives and no improvement at all a treatment. It is an unfortunate situation but the drugs just do not work.

Comment

If you spend some time with all the remaining questions and ideally this whole website you can get better and logically built understanding why these drugs do not and also cannot work. Anyway for an overview one can check this source which also lists other than approved treatments. Please do not forget to at least read about my theory and experimental protocol which cannot be called treatment but which is intended to become a real game changer.

Related questions

  • Is there effective treatment for ALS?

 

What is riluzol/rilutek?

This is the first drug approved for use in treatment of ALS. You can read about it here and then of course google for any other more detailed information. It basically targets the excessive glutamate levels in brain which are known finding in ALS patients. However the drug is no success and it is claimed it only prolongs life by couple of weeks while not improving anything and by introducing additional negative side effects.

Comment

My comment is simple. It does not work at all and it is completelly worthless. Perhaps it can have some value for science but for patients it is worthless. My mother got it as well – it did not help at all and made her more sick. Interesting information about the drug which I have hard time to understand is that even the creators or science does not know what and how the drug should actually do or how it should work against the problem. This looks like it is more some terrible experiment than anything else. Natural question is – How the heck can someone approve something like that (unknown mechanics, poor effects, negative side effects)? This is pseudoscience or not really sophisticated science.

 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  

Can stem cell therapy help with ALS?

Stem cell therapy is often mentioned in the context of ALS disease. There were many ALS patients who underwent the therapy but it never cured anyone. The idea of stem cell therapy is more in slowing down the disease progress – on individual basis it is very hard to measure any effects because nobody knows how long would the patient live otherwise. There is a big discussion and ethics related questions around stem cells use and this is also the reason why it is not approved in many countries. ALS patients had to travel to countries where this experimental treatment is possible. Since this is not covered by insurance companies from obvious reasons it usually is quite expensive matter which many cannot afford. Those who invested in it still did not experience the desired outcome. However there is one remarkable story to tell – the story of Ted Harada. This man was diagnosed with ALS in 38-years and he volunteered for experimental stem cell therapy. To surprise of everyone the therapy helped him and he officially regained some strength back – he participated in charity 2.5 mile walk as per the available information. The promising early success fell apart when Ted Harada died on brain cancer. Please read about it in this Tribute to Ted Harada article. This story is 5 years old and as we can see, not much positive happened on stem cell front for ALS patients.

Comment

I commented the Ted Harada case earlier when I first observed that in a very lucky way. It actually made me to rethink the potential of this treatment. I was sure this therapy has nothing to do with root cause of ALS (and criticized that) but it could have its possible value in the recovery phase which is the phase following stopping the progression (finding root cause or even eliminating it without exactly knowing how using heuristic experimental methods). I understand stem cell therapy as an attempt to rebuild damaged and destroyed “tissue”.

If you read some basic articles on it you will realize that the stem cell potential is mainly to stop degradation of the support cells in nervous system which nourish and support neurons – these are those in ALS known astrocytes and glial cells. These cells obviously play important role and in my posts you can notice I mention them also in the context of possible infection which can target these cells (directly as well as indirectly). But if the damage is ongoing and persists it is unfortunate competition and the rate of damage is most likely higher than rate of reconstruction humans would be capable to achieve with these stem cell treatments. I compared this effort to repairing house roof during hurricaneThis is why stem cell therapy is in my opinion not a good primary treatment. It probably was not planned to be but this also illustrates the situation in ALS – humans approach the problem from the opposite end, they focus on symptoms, they focus on slowing down (tactical option) and they invest very little into strategic root cause leading projects. As a big criticizer of genetic research I should end with my hypothesis. Extremely expensive genetic research also falls into symptomatic projects – it is not root cause leading and thus people will continue to fail. If 100 millions of people stand out and start calling for paradigm change that would be something else!

 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  

How long can you live with ALS?

It is stated the average length of life since receiving the diagnosis is 2-5 years or similar. There are great differences – some people resist and live more than 10 or 15 years. Extreme case is the most famous patient Sir Stephen Hawking who lived with the disease almost whole life (55 years!; instance of miracle). The problem is that even these admirably long living patients get relatively soon into that immobile or paralyzed mode and then live longer in this condition. Despite their resisting, the quality of life is extremely affected and the patient as well as family (care givers) need to find new way of life. There are couple of things which can prolong life which was also Hawking case. Without extra care he would probably die in 1980s when having already great difficulties. Some patients refuse those interventions (surgery, ventilation) which is understandable given the unfortunate state of things. Lot of patients die relatively early since receiving the diagnosis – several months or less than 2 years. In some countries people choose euthanasy.

Comment

It is very unfortunate state but please go through all other questions in all sections because there are certain traces which could explain these differences and move humans forward. There is actually something to do!

 

Limitless Wisdom Corner

Where there is great love, there are always miracles (Willa Cather)

 

Related questions:

  • Why length of life with ALS is so different?

 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  

 

Is ALS incurable?

As per the official sources ALS is incurable and 100% fatal. This is the simple answer from medical authorities and this is also how public perceive it.

Comment

There is no doubt people diagnosed with ALS get worse and then die. However with ALS there are many fundamental problems which could theoretically question above conclusion or explain that in different light. Please check the below section which responds this question again from a bit different angle. Never loose hope, resist and never give up.

Limitless Wisdom Corner

Blind belief in authorities is the greatest enemy of truth (Albert Einstein)

 

Equivalent questions:

  • Is ALS 100% fatal?
  • Is ALS untreatable?
  • Has anyone recovered from ALS?

 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  

Is ALS caused by stress?

Stress is a word everyone understands but there are certain types of stress and people should always try to specify or describe the stress they actually mean. Obviously we have psychic stress then physical stress and if we were experts or scientists we could also talk about oxidative stress or perhaps even other types (?). It is no surprise stress of all above types plays role in ALS development and all are highly suspected.

Comment

Stress and the direct links to ALS present such big traces that I am almost wondering how is it possible humans did not achieve any success or breakthrough yet. Well, since I studied this problematics from great width I think I know why is this happening but that is a for greater debate – please read my whole website! 😁 The reason why stress or better its regulation is so important is that it is a really damaging factor for our precious organism, not only human organism but all creatures and even plants. Imagine you have two persons. Both have just bought shiny new car of same type, perhaps different only in engine power and some advanced features like smart assistants or top sound system.

One person uses the car wisely – this person uses the car in line with the designers intention. This includes everything like style of driving, regular care, protection from weather factors. There is yet another one quite neglected and absolutelly obvious but extremely important aspect – this smart person keeps the car clean, externally (exterior), internally (interior) and then also from the advanced internals point of view, despite the person has no expert knowledge (cleaning of gas system, use of proper type of gas in terms of octane number, no fu*king BIO components etc.). The car serves well despite it costs something extra. From car point we can say it really likes its master or driver and they live long and prosper, perhaps they have even mutual  emotional relationship! 😊

Now what about the second person? It is clear where I am going, right? So let´s keep it short. This person just does everyhting opposite and NOT really in line with how the car designers thought the car should be used. The worst thing is that this person is not just occasional sinner but a chronic sinner – from some unknown reason. So the car is dirty, unmaintained, driven in stressing way (sharp accelerate & sharp brake style). This person just likes this and perhaps is rich so has more cars or can buy new after 2 years. This car is under chronic stress of all kinds, thanks to its driver and owner. It could be more likely involved in terrible car accident.

Long story short – this is same with our bodies. Someone just stresses it too much and does not maintain and care enough. Some people often repeat  how adrenaline is their drug but then something bad happens, they do not listen and continue, then something even worse happens. Humans are already in stage where replacement of parts is possible and these “sinners” (not always it is only their fault) can get new liver or kidney. Listening to their counterpart is often not developed well in people. They can get exposed to other harming conditions and together with stress factor they may find themsevles in bad situation. Medical system supports problems as it suppresses problems chemically – no pain, no problem is just terrible approach.

These are simple analogies and it is just the top layer how to explain it to people. But nobody should doubt this is just some fairy tale (yeah, stress, I know, what else do you have there?). This can be explained also using known findings (and mainly very complex and advanced links!) by medical scientists. They can start talking about layers of immune system or endocrine system and digesting system. This quickly comprises whole organism including all organs, directly or indirectly also nervous system and how it suffers under certain conditions etc. I recommend everyone to study these things from popular sources as it is mainly the lack of knowledge and consequences which are behind many health conditions and diseases which develop slowly after 10-30 years of bad lifestyle.

In ALS stress plays role in the same way it plays role in cancer. Something is under control of the person (lifestyle), something is not (genetic predispositions). However the often cited oxidative stress is important link to the overall ALS mosaic. This is where the toxic metals come to play. Of course I am not blaming anyone and instead trying to help but in this context please read something about Mr. Iron Horse.

 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  

What is ALS reversal case?

This is really positive thing – certain ALS patients experience improvements. This means that science has clear evidence ALS is not exclusively “downhill ride”. These cases are quite rare but happen and are being studied. Problem is that after improvements or apparent slow-down/stopping of the disease it continues again in the bad direction.

Comment

It is another coincidence that some people who are considered ALS reversals were experimenting with medication with antioxidative and anti-inflammatory effects. This is 100% in line with my experiments, experience and also theory I am publishing here. It should be source of unprecedental boost of hope for everyone with ALS. There is one person who seems to be really eager to decipher this phenomenon, his name is Dr. Rick Beddlack. I have contacted him and what do you think? No response whatsoever. This is not surprising, one day he will regret that for sure. People are just not collaborating well and therefore ill people are dying. However even the ill people do not believe. If you do not believe then do not expect any miracle …  

 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  

Is ALS genetic disease or disorder?

As explained in the ALS forms question science thinks there is familial and hereditary version of ALS disease. There are gene mutations which were identified in ALS patients by comparing with healthy people. There are  probably certain genetic predispositions which make such persons more vulnerable but it does not mean the genes are root cause of the problem.

Comment

Criticizing the genetic theories in ALS is my speciality. I think it is logical and rational to not emphasize genetics as a factor but the opposite is reality. Other much more important factors are kept in behind – mutagens like viruses and toxic substances like heavy metals. I suggest reading my Genetic Detour post. Every person needs to realize that it is environmental trigger or more specifically some combination of more triggers which causes ALS development. If a genetically more predisposed person (Familial ALS) gets the disease earlier since it is weaker and less resistant then genetically normal person can get ALS developed as well, only a bit later, after longer exposure (Sporadic ALS). This is not a rocket science. Please explain this to ALS researchers, if you will have chance to talk to them. Suprisingly the most known gene mutation is in SOD1 gene. In other words a detox gene. This can be simply interpreted like warning of following type “hey, stay away from toxic substances and metals, do not work in metal processing factories and you can live long and prosper, be careful at your dentist and do now allow him to put mercury in you”. One can also receive the protein, called super oxid dismutase in food if potentially having problems with generating it internally. These findings are obvious but never mentioned by research or media which makes all strange and suspicious. 

 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  

 

Where does ALS usually start?

This is variable but mostly the problems are first detected in one hand/arm or leg and thus in peripheral nervous system (PNS) . Big warning is highly reduced muscle mass (muscle atrophy) – sometimes small muscles on hand etc. Often also problems start with voice and speech. Science has big problems with diagnostics and early neurologic problems can signal many problems including those curable – there is big symptom overlap and danger of misdiagnosis. That is why neurologists hesitate with giving the diagnosis unless they are more or less sure. Problem of this is that at the same time they are unable to cure even the prior suspected diseases or conditions successfully – many ALS patients are aware of several month long period of uncertainty and worsening the symptoms.

Comment

There is preALS state (most likely curable) for sure as obviously such disease does not develop overnight – please read next sections having more related details. Early diagnostics is just the ultimate problem to solve but it does not have strategic focus. Due to limited resources humans prefer allocating resources using far from optimal key – better rentability is preferred (see my post on funding but take it with certain reserve 😉). I just do not see science would do enough in researching those environmental triggers – since toxicity is big part of it one cannot be surprised as we live in toxic cities, spoil nature, loot oceans and we are just not realizing fully what we do and what consequences will follow. You are also suggested to read my Fuzzy Disease Scope post from Stealth Infection post series.

 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  

Does ALS affect brain?

It does affect brain and mainly the motoric centres which are also in spinal cord. The other part of brain remains unimpacted so all cognitive functions remain unaffected so patient realize and perceive everything normally. Question why only motor neurons are impacted and destroyed needs to be yet answered. However there is certain overlap with FTD (frontotemporal dementia) and other neurodegenerative diseases – there are links among them and it is logical. My old post partially dealt with it.

Comment

My comment is that there is virus capable to target motor neuron cell and that there is surprising linkage between mercury intoxication consequences and findings of ALS scientists (shortening of neuron axons occurs; mitochondrial disfunction).

 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  

Is ALS research sufficiently funded?

ALS research centres state they are clearly underfunded. You can visit the websites of those ALS organizations or do a Google search on ALS funding. As per my information ALS is underfunded too. It seems that the resources spent on Alzheimer disease are multiples of ALS. This can be explained by higher incidency of AD but we should also realize Alzheimer is an old age disease, and thus result of lifestyle to high degree. On the other hand ALS is registered as incurable mystery which can kill anyone in any age in a very brutal way, it deserves higher focus for sure.

Comment

I realize the importance of proper funding but much more important is what exactly is being researched, what projects and with what results are preferred. I see the overall focus on genetics dominates but it will certainly not answer those peculiar ALS questions. Humans need to realize they need to look for answers in the environment, not ignoring or neglecting it and trying to manipulate genes – this is road to hell. Science knows genes in DNA switch (turn on and off) in reaction to environmental and also internal triggers. There is also no relevant information that genetics is the key responsible factor. It all is the complet opposite but humans neglect that. There is a simple evidence for these claims – sporadic ALS is 10 times more frequent than familial ALS and one can consider familial ALS only a delayed sporadic ALS. Humans need to understand what is important – it is ENVIRONMENT. Once it is cleaner, humans are healthier and their genetics is safer from DNA mutations. Please read my toxic metals related post and also Genetic Detour post. Please check my post where I briefly checked how funds are allocated in United States.

 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  

Why is there no cure for ALS?

Simple answer is because science has no good understanding of the disease. Mainly the whole big picture and mechanics are yet unknown. However there are problems of human origin which present certain barriers of progress. These are elaborated more in other questions so go through them thorougly.

Comment

My understanding is that the cure humans are looking for does not exist and this is the reason why we do not have it. Simply we cannot have it. But does that mean ALS patients are lost and cannot get cured? Of course not. It only means the current human imagination of the cure is very inaccurate. Look at what humans are producing and where are they looking for cure and perhaps you will understand better. Once humans realize the truth can be somewhere else things can rapidly change. I try to accelerate this change.

 

Limitless Wisdom Corner

Success is stumbling from failure to failure with no loss of enthusiasm (Winston S. Churchill)

When resources are limited and many related problems remain unresolved, it can be sometimes beneficial to act like a smart gambler rather than resource allocation optimization mastermind. Instead of trying to solve those 100 problems concurrently you can pick just one and call magic phrase “I am ALL IN”. If you are lucky enough you might have just solved 1+99 problems (Mr. Underhill From Shire) [“ALL IN” on ALS]

 

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Who is Lou Gehrig and why ALS is also called Lou Gehrig disease?

Lou Gehrig was famous baseball player who was diagnosed with ALS in 1930s and his fame and unfortunate destiny helped to spread the awareness of ALS. In United States ALS is called Lou Gehrig disease (alias).

 

Comment

I think Lou Gehrig, together with Stephen Hawking (later) has done for ALS more than anyone else ever. His value is not only in the raising awareness area. I believe his well documented life, his personal traits and life attitude will show value in breaking the disease. Wait for it. I was studying a bit his story and you can read my speculative Iron Horse post.

 

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Why physically demanding activity is risk factor for ALS?

Science is aware of this heightened statistical risk of getting ALS among professional athletes, sporting persons as well as military personel and body builder community. Study among soccer players in Italy is also known. A bit strangely for me, science states it has no information why this is happening and I am not aware of any reasonable hypothesis.

 

Comment

Given all the information available about ALS there is obvious room for various theories which are based on other related scientific findings (logical linkage of  findings). Please see the other questions for more details – mainly inflammation and stress related. I touched the topic also in ALSSTAR post.

 

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How can you prevent ALS?

The official line says nothing or too little is known to speak about prevention. Risk factors are known and mentioned though – infections, toxicity like pesticids, metals, smoking, excessive long-term stress, heightened physical load or stressing the organism. Logically people should at least try to avoid these and care about their micro-environment and lifestyle.

 

Comment

While my posts are speculative they are based on above findings and logically refine it. I try to go beyond above simple recommendations which are basically identical to cancer prevention information. I really tried to build the theory on lower granularity – which for non-IT people means actually more detailed information. I tried to describe even the possible logical mechanics – what are preconditions needed to be presented in the organism, what needs to happen then – all these exposures, sometimes long term, sometime very intensive short term peak and how it can result in establishing the deadly trend. I am adding real-world and unquestionable compatible data from my mother case, my own case (strange health issues) and then other people. One biggest example for all is that famous baseball hall of fame case, the Lou Gehrig case. All fits the speculative mosaic somehow. So what do you think? Should not it get some focus?

 

Limitless Wisdom Corner

An ounce of prevention is worth a pound of cure (Benjamin Franklin)

Hell is truth seen too late (Thomas Hobbes)

 

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Is ALS advanced version of Lyme disease?

It is not surprising there are theories which suspect ALS is actually acute and very advanced form of Lyme disease. This is denied by officials but without any good enough scientific explanation.

 

Comment

Honestly this is a big and perhaps even the most controversial thing in ALS problematics. People are not that stupid so logically when they clearly see decent symptom overlap (neurologic problems, muscle cramps and twitching) they start to speculate the diseases can be linked. I myself have personal experience with this but I try to not overemphesize my personal view.

The thing is that gradually I got to advanced traces which really go into this direction and only the higher complexity of the whole ALS syndrome causes that we simply cannot put “=” between the two diseases. However the bacterial infection (spirochetes) is most likely part of ALS – there is high probability it is contributing factor. There is scientific evidence for this – mainly the unquestionable presence of the “bugs” in ALS patients and then also something what I identified as chain of reactions contributing to the glutamate intoxication – signature finding in ALS.

I summarized these thoughts in my Lyme post, Stealth enemy post and I mention it all over. There is another possible problem. Around Lyme disease there is strange fog and even conspiration theory (“escape of cultured spirochetes from US labs located on some island, east coast near Connecticut”). In literature I went through, it is even stated the US doctors diagnosing Lyme are getting troubles (loss of license) and there are weird pressures from official authorities. Honestly I do not understand it and while I am only mentioning such crazy theory – i.e. not supporting it here, I need to show certain concerns of personal experience regarding how Lyme or Borreliosis is approached by the system.

The book (references within my posts) also mentions fact which should be easy to validate – it claims those bacteria are actually part of majority of people and it is not really about getting it from tick bite. There is even guide how to prove it with microscopy including photo docummentation. Lyme specialist Buhner also states in his book weird concerns some doctors are raising in the context of Lyme disease (again inaccurate incidence stats, detecting bacteria in other body fluids etc.). The scientific phenomenon of biologic nature playing role here is so called bacterial pleomorphism.

 

Limitless Wisdom Corner 

Blind belief in authorities is the greatest enemy of truth (Albert Einstein)

 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  

What disease can be mistaken for ALS?

There are such diseases especially in early phase of the symptoms. Mistakes happen everywhere where human factor is present. One such disease is GBS but initially it can be also Lyme disease or other. That is why patients often undergo unpleasant months long period of fear and uncertainty. In this post I also mentioned the case in which man was misdiagnosed with ALS. Similar diseases were partially described in the Neurodegenerative diseases – Just a coincidence post.

 

Comment

It is simple here – mistakes happen, always and everywhere where human factor is present. This is extremely important in ALS because the mistake here can kill the person. The psychic factor of death sentening prognosis together with some disease (despite not ALS) can become road to hell. Please read my Fuzzy Disease Scope post too and resist even if ALS seems correct diagnosis, this whole site with 40+ articles on ALS is about providing helping hand in such case.

 

Limitless Wisdom Corner

It is unwise to be too sure of one’s own wisdom. It is healthy to be reminded that the strongest might weaken and the wisest might err (Mahatma Gandhi)

 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  

 

Is ALS caused by virus?

Science tried to identify possible microbial factors – virus or bacteria, mainly in the early decades, but as per official information, without any luck. From etiology point ALS is considered not to be caused by any known microbial agents.

Comment

There can be nasty catch but that I cover in the next block of questions – this is mainly the official version. Everyone should treat this information in the way it should automatically mean this option is still very likely because nothing was denied scientifically – it just was not yet confirmed. I try to illustrate this with other knowin historical facts, for example it took scientists 40 years to actually notice there is another hepatitis virus version – humans had all the advanced microscopes but still it took them decades and they certainly had to have some luck to observe the C version of the virus.  This virus path is actually quite HOT. I tried to analyze this option and the result is Stealth Enemy post and then Stealth Infection post series. The extra complexity can be presented with hypothesis that ALS is not simple disease with 1:1 mapping (disease : causative virus) but it actually is multi-factor syndrome where viruses and hidden bacterial infections play important role in forming synergic coincidental relationships which are overlooked. Please do not forget one of the important risk factors observed for ALS development is … PLEASE PAY ATTENTION … is repeated infection. One does not need to be virologist, immunologist to see the danger and obvious logic. While science is telling us it is a risk factor and then there is NOTHING. Any bright enough person will see great space for different theory. The repeated infection got actually transformed into something less obvious, perhaps into stealth infection, infection which today medicine does not see despite they are looking at it – or at least should be looking at it. How could be viruses (or bacteria!; not that important now) suddenly eradicated from person who suffered with repeated infections and then got ALS? Would not that be some strange sort of untrustworthy miracle? Of course. Miracles happen but not in this way. Please do not take current scientific proclamations seriously – they are not in position to deny advanced virus cause of ALS. You cannot take seriously anyone who on one side claims that he does not understand something at all (ALS) and on the other hand claims it certainly is not this and that. If you detect such acting you can be pretty sure you are subject of intentional manipulation. That is my message. Once people accept such simple logic they can make real progress … In the second block I will show that even science has real findings leading us to this virus suspected theory.

 

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Who is most likely to get ALS?

Answering this question is not hard today – it is all about empirical knowledge. The disease is with us for more than 200 years and last 100 years it is under investigation and research so clinicial data and any other about patients are being collected. Science has this data sets and it knows and needs to know this very accurately. I myself went through many people stories and the patterns are obvious, repeated and unquestionable. Everyone can try it too – find 5-10 more detailed ALS stories, thoroughly analyze them and if you do not see any pattern, then there is something wrong with you 😉

Risk factors:

  • High and long lasting psychic stress (common with practically all such diseases like cancer, MS etc.)
  • High and long lasting or repeated physical stress (professional sport, action, adrenaline, military service, already non-casual sport)
  • Exposure to toxic substances (mainly heavy metals, pesticids, chemicals of even daily use and basically “all that shit” which we spoil planet with)
  • Drugs, smoking (steroids – athletes, body builders!)
  • Repeated infections
  • Genetic predispositions (it is fair to support this, some people are just less tolerant to above items who dominate though because these are those hard to decipher environmental factors you will hear about any time some ALS expert speaks to public)

Big warning should be familial cases – these people should be more sensitive in terms of recognizing early symptoms due to existing experience (fear factor). If they would know about this website they could know what one can do – I believe it can help them. The sporadic ALS is hitting people in various ways. Still there are couple of things known – men are on average diagnosed earlier than women (age). Then there are groups of professions (athletes, soldiers, metal workers) and activities (demanding sport, body building) which show heightened statistical risk of ALS. Media inform about ALS more and more which is good but it also becomes more apparent the disease is hitting young people more than it seemed before and there are known cases among children (term juvenile ALS). Other questions will add more details on this.

 

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Will ALS be cured in next years?

It is hard to predict future but in the purely scientific world there is not many reasons for such optimism, i.e. humans will be able to cure reliably ALS in upcoming few years. I often cited Michal Schwartz who specializes on neurodegenerative diseases and in her book (see my ALS 101 post for references) she stated there is still insufficient information about ALS so it seems that humans will not be able to find cure in upcoming years. Please note that the book has been published in 2015 and therefore 6 years ago. She was right and today the situation is not much different.

 

Comment

I have made quite a deep dive into the ALS problematics and on this website I am hypothesizing and marking fundamental problems which may present brakes of the progress. I also provide my personal experience and alternative theory (see last section of this FAQ page). It may sound like esotheric statement but I see the disease and lack of its understanding is tightly coupled not only with the current state of science and technology but also with the overall level of global human society. We need to rapidly change the way we think and act on this planet to reach that knowledge – but perhaps it is already work in progress! It is not coincidence I am citing Edgar Cayce below. One of his ultimate message was that every person (and thus mankind as a whole) needs to learn specific and disinterested collaboration. I extracted this from some other book just today and what would you say? I call for better global collaboration for some time already

 

Limitless Wisdom Corner

We are finding all states existing in physical bodies are being created with what we can meet with. In truth no incurable states exist as every disease is result of breaking some law. Healing comes when is in harmony with other laws which together yield in a need of healing. No curing is finished without expendituring certain psychic force. During treatment of any type, counterforce let it be surgery or medical or spontaneous, is not more or less active then active force spent in psychic area (Edgar Cayce).

 

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Is there any hope regarding ALS?

Official authorities will always respond “YES” but the question why most people ask this question is little bit different.

Patient: Is there any hope I can be cured? 

For science this is already question which pushes it to the corner and forces it to respond:

Medical science: We are sorry but given the state of things it is not likely we will have cure soon enough for you.

 

Comment

The way science approaches this problem is just unfortunate and practically everything including the standard methodology, ignorance of traces, overfocused genetics works against all current patients as well as near future patients. The science is incredibly slow and slow learning. There are people who deal with this problem for decades and they think they are the masters of it and do not need to listen. Unfortunately for patients, these people never came with anything working. Just this simple fact is satisfying condition for introducing changes because only changes can bring new atmosphere, new views, new ideas, new theories and mainly new enthusiasm. I am not saying ALS researches should be sacked but those responsible people in charge should be watched closely and re-assessed immediatelly. In bad performing football team you cannot fire the player squad – you can get rid off some problematic player, not all. However you can sack the manager or coach and that is what should be at least considered. No results? Good bye! 

Anyway on a more positive note, I believe there is really something everyone affected can start doing. That is why I am creating this. Please go through the last question block (but ideally do not skip the middle block and read it too) and before you get there try to discard any prejudices – start there with a calm and positive mind, because THE HOPE EXISTS, I KNOW IT … and even when answering above modified question (but time is factor!).

Below song could help you to tune your optimism.

 

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Following section contains questions and answers which go more to the detail of ALS syndrome. I will be also pointing to my previous posts which further point to scientific journals or cite them directly. This information should equip reader with knowledge which media usually do not cover and which ALS organizations also do not emphasize – yet science knows. This is the first source of certain hope but there is a problem – what cannot be easily monetized by the system will not receive funds and will not be targeted with additional resources and human effort. Science is often rigged, nobody should doubt about it because every single area of human acting is rigged, whether politics or fight for the environment (absolutelly terrible!), sport matches, medical research – just everything. We should accept this final disappointment that human race always exposes its traditional weaknesses and no matter what official proclamations are issued the reality is always worse and side interests are everywhere. However such very pessimistic statements do not describe the reality as a whole. It indeed is not 100% and there are people who try honestly and without side non-transparent interests. These people need to face not only the problem they are trying to address but need to face their human fellows who work against them from many reasons, often even without realizing what global damage is associated with their acting (personal short-term benefits preferrence). Please do not ever doubt these human factors & forces do not brake the progress on ALS front. Thinking it is not the case in ALS research is a result of lack of wisdom and abundance of naivity.

ALS FAQ 2021 - Deep Dive

More detailed information on ALS and its possible mechanics.

What is wrong in people with ALS?

Surprisingly (or not surprisingly; depends!) media do not inform public about the findings at all. However they never forget to stress sufficiently ALS is incurable and 100% fatal so that every Earth citizen accepts this “truth” burned into brain (it was repeated for 1000 times!) so that he or she can walk on this planet and further spread bad news with no hope whatsoever.

Unsuccessful past and history is propagated into presence like a poison and the disease is viewed by media like a good source of income – clickbaits, bad news sell!, emotional stories sell!, but where is hope? Sometimes I would think that everyone who is killing hope and belief in the power of individual should be imprisoned. When I am thinking about this situation I am never sure enough whether this obvious manipulation is directly driven or managed or it is just an evidence of the current level of human global society. I tend to vote for the second option because I see how people are ignorant, selfish and greedy every day – just watching the TV news is enough. The disorders are so prevalent. Loyalty, which would be required for keeping conspiracy secret safe, is not well developed trait and it would become subject of trading and conflicts for sure, thus leading to disclosure.

The truth is ALS problem is not a priority and due to side interests of many powerful groups its resolution is still hanging in undefined future. I could write essay on this but I do not want to shift the discussion away from the critically important aspects. So what is known? I already wrote about it here. It is an older post and could be improved since from that time I went through additional helpful information but surprisingly I don´t need to make any changes there as well as in my prophetic ALS definition published several months ago. i. For now it should give an idea and other questions provide more.

 

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Is bacterial infection possible cause of ALS?

It most likely is a contributing factor but why you are not being informed about that? Why media do not inform about such personality like Lida Holmes Mattman? Why media do not inform about bacterial pleomorphism and its potential harmful consequences? Why media always write only about gene mutations and genetic research, genetic screening and genetic case studies? This just is not well balanced informing, this is manipulation.

In fact many (thousands!) people logically noticed Lyme disease results in symptoms which can be compared to ALS symptoms. Naturally people suspect the bacterial infection of this type can play role in ALS. What authorities respond on this? They have denied that repeatedly while not provided any great evidence. It is strange that the real scientific evidence rather supports this theory and ignoring this link becomes suspicious. The presence of this bacterial infection can be the root cause for that chronic inflammation.

 

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Why science is unable to make any real progress with ALS?

Science has done great job in the base research. How could I find the links otherwise? This is a great achievement and we should realize the knowledge to decipher & beat ALS already exists among people. The problem is the knowledge is scattered across many fields which do not collaborate well and exchange information. This multi-disciplinary nature of the multi-factor ALS syndrome is the key thing. Unfortunately there is one branch of science called ALS research which from some reasons prefers wrong approaches to the problem.

Humans still have not fully learned the importance of honest and side interest free collaboration. There are omnipresent interests to make money on the cure once it is revealed. If you have troubles to believe in this then you only need time to accept it.

We live in the world where some corporation comes with a treatment for a life threatening disease (not ALS but similar) but asks for millions and if you dont have them they will not give it to you and you die. Isn´t this sick? Isn´t this sick world?

Of course research needs to be paid – all requires some resources but humans have resources. They are willing more to fund 20 years lasting meaningless wars with extreme collateral damage (civilian casualties) and no real results. Humans still cannot meaningfully allocate and distribute resources on good things for their own good.

What we need to do? It is simple – start interesting and getting united in this matter. It would be amazing if billion of humans realized where we are heading and started to  #CallForParadigmChange.

 

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Is viral infection possible cause of ALS?

This is similar to the bacteria question. For example there is study which clearly found high levels of HERV virus in ALS patients. It is known these virus strains exist. Everyone today knows that virus mutations occur and can cause problems. What is very strange for me is that it is known there is variant of the virus which can target motor neuron – it somehow prefers some receptor of this type. Usually the cell receptors are not unique across the whole human body including all those various tissues. Naturally we can deduct one virus adapted to certain environment can be harmless but if by any accident it gets to completelly different part of the body and unfortunatelly shares the same receptor type (I call that a collision) then what would you expect to happen? I would expect it can become more virulent and target that new type of tissue because of the identical receptor. Who´s the next turn? Of course immune system needs to react and protect the invaded tissue – by destroying the infected cells. If science would not recognize it then it would state autoimmune reaction. Is this happening in ALS? Of course it is, science blames astrocytes for killing neurons. So I repeat there is a study which confirmed these viruses, normally residing in intestinal tract, could somehow get to central nervous system (CNS). There are some ways considered how it could happen. However what is alarming for me is the following fact – despite of this finding, there was some follow up study with different method and using this modified method no viruses were found. Before, they were and then they were not. The conclusion is it is not reliable finding and thus nothing to further investigate.

What? What? Whaaaaaaaaaaaaaaaaaaaaaaaaaat? I hope you are screaming now. When I read about such sloppy conclusion I thought someone is kidding me but anyway, it seems it is like that. Please read about it in my “very lucky post” here. I can only add that I am either missing something or it is insanely bad approach to the problem or it is obvious cover-up. Simply not convenient to sniff around this, similarly as with bacteria.

Do you think there is any historical lesson on accidental virus traveling inside of the organism which results in disaster? I guess you know I would not ask if not. There is a lesson with polio virus, a common virus which can cause paralysis (nervous system?) if accidentally gets to places it does not know so well. At least this is how Frank Ryan explains that in his book. References here (bottom). One citation follows.

Only in a tiny minority does the virus make its way to the anterior horn nerve cells in the spinal cord, where infection and subsequent death of the nerve cells gives rise to the paralysis we saw in President Roosevelt. Bizarre as it might seem, the infection of the nerve cells appears to serve no purpose as far as virus transmission or evolutionary pathways are concerned. Indeed this most dreaded complication of poliomyelitis appears to be coincidental [Frank Ryan: Virusphere].

Hmmm I still want to add something – I personally suspect also VZV or EBV virus or both (or the whole herpetic family gang!) but this is my personal experience (mother, myself). EBV presence has been confirmed in glial cells and VZV I mainly suspect to cause damage in PNS – the first problems with hand, fingers or leg, I would assign to this virus which targets nervous tissues (if you wanted to check my forearm, you could see it can be typical VZV blister). The problem with ALS is that we cannot think in that simple way. ALS is a multi-factor syndrome and it is a layered problem. Only one layer of many, the microbial layer can and most likely does comprise more virus types or more bacteria strains. It can be sort of microbial mosaic or puzzle. Exists something like that or am I just crazy dude? Of course it exists, it is called human microbiom. This is the mosaic and progressive scientists are learning how “guts modulate immunity” – as always other colleagues are criticizing them and questioning the new ideas while insisting on their old-school theories which have not explained nothing whatsoever (in ALS).

What can be even more confusing for today old-school scientists is that the effects of viral infection can be actually generalized. This would mean that in one patient – that partial damage to the organism is done by VZV and in other patient the generic partial damage, most likely to immunity, is done by different virus. Another very advanced part of the problem can be something I would call viral polymorphism – this basically describes virus capability to behave in very broad way. For instance there can be virus which is well known, described and considered 100% understood. It causes certain known health problem. But the same virus can under different and unique combination of environmental factors behave very differently and cause extremely serious damage. The lack in knowledge of these capabilities leads to underestimating the virus potential. For example when patient is screened from immunity point and this virus presence is detected it can confuse science – it can be interpreted like there is some basic minor cofactor infection which is not a problem. Big mistake! Every virus with known damaging behavior is problem. In the context of ALS I suspect this neglecting of the potential is concerning VZV – very dangerous virus, it is not only about shingles (low severity issue). It targets nervous tissues and due to its silent and creepy progression where no visible symptoms like skin disorder or fever are apparent, it can gradually cause serious troubles. Why I suspect it? ALS starts often in hand – patients are at first treated with carpal tunnels or some other problem but unsuccessfully. In case of misdiagnosis there can be actually loop of VZV Vs immunity micro-battles and the result is gradual scarring of the nervous tissue. What can be the outcome here? The scars may actually disconnect some partial muscle from the nerve. This would mean the problem can start in PNS, not in CNS. I always recall my mother hand – small thumb area muscle atrophed completelly. It disappeared and she still was months ahead of ALS diagnosis. This means the problem in her PNS evolved for years.

Other such overlooked virus can be famous EBV – it is not just about infectious mononucleosis, it can have much more serious collateral damage (liver). It was detected in CNS reliably and you know where? In the glial cells – astrocytes and microglia. In other words cells which are of uttermost importance in ALS investigation. The polio virus should be big lesson for science as it has these capabilities and there are probably more such examples. One can be even COVID-19 as it is not just simple virus causing loss of smell and taste or even less severe problem (hardly noticeable). It can kill you if you meet certain criteria (weak immunity, system already overloaded prior getting infected). But here we know this – there is no mystery. What about VZV, EBV, HHV-6 etc.?

All above obviously means any classification and statistics application across patient samples will inherently fail – that is why I shout as much as I can that ALS requires different approach, different methodology. Nobody is listening though. But wait for it – the revolution has already started, you just need to give helping hand and share this information. 

 

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Why toxic metals are mentioned as risk factor for ALS?

Because it is an empirical fact. It is known people working in metal industry or other toxic environments statistically show correlation with ALS.

Why are toxic heavy metals problem? Because their chemical properties are very dangerous for human tissues and can entrap already weaker immune system and contribute significantly to rise of chronic inflammation. They can be and most likely are key component in out of control oxidative stress processes. Once certain thresholds are exceeded and there are other risk factors presented (like having spirochetal and other infection in brain) the danger that ALS will develop dramatically rises. You can read about it more in the posts available but key words are following.

Key words:

spirochetal bacteria, L-forms, immune response, QUIN, ROS, QUIN-2-Glutamate, heavy metal, mercury, lead, aluminium, cadmium, radiation – X rays, immunodeficiency.

 

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Is ALS genetic disease?

I will keep this answer very short as others are a bit lengthy and this one is pretty simple. Another reason is that it is my revenge to the system. Genetics does not deserve such focus in ALS. But viruses, bacteria and toxicity do. So the response is “No it is not!!!“. Existence of sporadic ALS is the best evidence which people need to respect.

 

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Is chronic inflammation cause of ALS?

This is also very straightforward because chronic inflammation in CNS is unquestionable fact in ALS. This has dramatic consequences but why is this happening? I have answer on this as well, see other “immunity” related question. In short, my hypothesis is whole ALS extremely complex syndrome can be reduced to this chronic inflammation problem which massively shifts the whole effort to the area of immunology, virology, bacteriology – away from genetic and mollecular chemistry games.

How could I support such hypothesis? It is again very simple. Imagine you are trying to find solution hard somewhere but even after several decades, billions of spent and deployment of cutting edge technology you never find anything significant. Why? Because it is just not there, it is in different area where the focus has to be moved. Now apply this generic thought to ALS research which is overfocused on genetics and mollecular hacking – no results whatsover. Time has come to change the paradigm, effective immediatelly. If not done, people will be dying as they were for last decades. Isn´t it worth trying this tactical as well as strategic move? Please write me what is your opinion.

 

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Is immunity factor in ALS?

Simple answer – YES, YES, YES, YEEEEEEEEEEEEEEEEEEEEES!

I analyzed this in my quite recent post and the bottom line everyone should learn and remember is following. Some scientists who really did great job here kind of reduced the problem to another question.

Is that chronic inflammation caused by exaggerated immune response (autoimmunity) or rather the opposite, i.e. by insufficient immune response?

  • EXAGGERATED (EX)
  • INSUFFICIENT (IN)

This is already getting us to 50:50 problem and thus excellent chance to choose the correct answer. Even if we choose wrong, we can immediatelly start exploring the remaining option. In my very early post (ALS 101) I am citing neuroscientists and the book actually informs about limited ability of the organism to call immune cells through choroidal plexus to CNS. What does that mean? I say: (EX=0; IN=1).

Then I cite other works where it seems it is more about insufficient response. But now I can step in with my personal story which has more parts. What have I done? I have massively boosted my immunity – detox, natural immune boosters, top class diet, resting and sleeping. After some time this made me “very sick” – but it was not sickness you would be afraid off. I have called that total mobilization. What happens if your immune system gets massive reinfocements? Logically it regroups and attacks with extreme power on all fronts within the organism as it has the required resources now. When immunity fights it hurts, you feel very sick, but in my case it was healing. Of course it can be a bit dangerous for very weak person can. Today science tries to suppress immunity, sometimes it probably makes sense, but I gave it always GREEN LIGHT 🚥 and even “instructed that” (Seek & Destroy pathogens, Restore balance). In my case this just happened and I have recorded all possible evidences of that (notes, photos). Again no problem with increasing INSUFFICIENT option (EX=0; IN=2). We also have scientific finding which directly supports the INSUFFICIENT VERSION. I cite that in my posts too. What is it about? Scientists tried to brake or suppress ALS with immunosuppresive medication and the results of this study was that patients were getting worse, it accelerated the damage and thus they came with hypothesis that immune system is actually positive factor, it is helping but insufficiently. This all goes to the same direction including my unquestionable personal experience with my body.

It can be quite risky for someone but for me it was nothing but great success which followed weeks and weeks of suffering – pain in nerves so I could hardly walk few hundred meters. I only heared my mother how she lived with these pains for a long time, the ALS was evolving in her slowly and at some point her immunity just lost the war and she quickly started to fade away. My wild hypothesis on this is revolutional and of course, controversial. Anyway I state the immunity fights for that person like Leonidas and his 300 men against Persians. If disease is not treated it gets only worse. The final outcome is deadly spiral leading to death. This is the story of ALS and if you are shocked, then save your effort on critics now, read this website completely.

Perhaps it is the complete opposite of what science was telling to patients for years – it is not about your body started attacking its own nerves. It is about exhausted immunity which is loosing in hidden raging conflict and science mistakenly interpreted the immune system activity. As humans we just need to accept it and embrace this lesson as we took all those prior (like treating diseases with poison like mercury).

 

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What ALS patient should avoid?
  • Avoid any demanding physical exercises – you have chronic inflammation, your immunity can be further weaken due to stress hormones produced. Of course if already in advanced phase it is irrelevant but as a fresh ALS patient this needs to be considered and maximum care needs to be put in organism reinforcement, resting and detoxification.
  • Avoid consumption of pro-inflammatory food – you have chronic inflamation, you need to support immunity to finish it, but not with bad food
  • Avoid thinking about the bad end – grasp the information provided here (whole website, spend time with it!) and start thinking mainly in present, when thinking about future imagine only positive outcomes, you need to believe but then also take actions. Stress is a fast killer factor. Resignation is killer factor too despite slower.
  • Avoid toxic food – prefer only what meets kernel criteria, one certainly must not receive more glutamate or (calcium AND lack of magnesium) or more mercury, more pesticids, more dairy stuff etc.

 

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Can vitamins or other supplementation help with ALS?

Yes but it needs to be used wisely. There are traces it helped some patients but it again is not reliable fact due to the complexity of ALS. There are factors of dynamic nature which practically prevent some nice statistical results across bigger samples of patients. But it all gets better when data is abstracted and assessed from its impact on immune system while being aware of dangerous boost effects (oxidative stress). The key is to know or at least speculate on how the ALS big picture looks like. I have done this and my conclusion in this matter is following.

The supplementation can help but it is very important to time it well. There are vitamins or minerals which can boost your immunity prematurely and this could result in bigger damage due to existence of inflammation in CNS. Please read about toxic metals and the importance of addressing this problem first (mercury!). If you got this you will understand that once detoxification is done the boosted immunity will do less damage and it can finally get the situation under control – after some time, being patient is crucial. The deadly loop can be broken, ended and new problem will need to be solved. How can be the damage to CNS and motoric functions repaired? Human body have great capability but very serious damage can be subject of other research (stem cell therapy?).

 

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What is glutamate factor in ALS?

This is very interesting finding science has made already some time ago. What is known is that ALS patients have heightened levels of glutamate in brain. Glutamate is an important neurotransmitter so it is required for our nervous system to function well. Homeostatic levels of glutamate mean the nervous system works well, there is a good signal going through the neural network. If there would be lack of it it would cause problems. If there would be serious abundance, it would cause problems as well and even worse problems and this is exactly what is happening in ALS patient organism.

It is like if you had some electrical network which is designed for certain range of voltage. But what if suddenly the voltage or signal is extremely strong and exceeds the limits? It starts to threaten the whole system. Just for a better imagination you can read something about Germany energetic issues – it has build massive wind parks in North Sea area. When the wind is too strong it threatens the whole system stability and there is even danger of blackout, loss of the electricity. This can be exactly what is happening in nervous system with excessive glutamate. Science knows it results in overexcitation and such neuron cannot withstand such influx and after some time it just collapses and dies. Loss of signal occurs, neural blackout. However before the neuron dies it has its agony phase – the overexcitation most likely explains those infamous spontaneous muscle twitches. If you know something about ALS you should be amazed with this theory – this is it!

However this is not all. Naturally we need to ask why there is so much glutamate? Where does it get from? More glutamate than necessary can have many people and experiencing this occasional twitches is often not a deadly ALS symptom. Still you should know these possible explanations because excessive glutamate can be result of poor food diet.

In ALS the problem is different but food is very important too. The link goes to chronic inflammation, another absolutelly unquestionable finding in ALS. This inflammation means there is ongoing activity of immune system. When stimulated, immune system uses substances (weapons) which are toxic also for our own cells and tissues. The design is still very smart. The idea is to quickly step in, resolve the issue including some minor collateral damage done to our tissue – it will get repaired as part of the aftermath consolidation activities. This is actually why we feel the inflammation (pain, swollen area). However in ALS things do not follow the optimistic scenario – instead the immunity falls into its own trap. It does damage but is not able to finish the job. Since it is also responsible for this collateral damage which results in other more and more PRR danger signals (when good cell dies in action; friendly fire) this results in calling in some additional immune cells and the inflammation is being spread without being actually finally resolved. This is the famous chronic inflammation.

But still what could be at the very beginning and why there is so much of glutamate? The answer is microbial infection in the brain, which is confirmed and there is good scientific evidence available thanks to amazing work of Lida Holmes Mattman and others. These extremely resistant bacteria of spirochetal strain live in the brain area, in CSF etc. and can be those who caused immunity arrived to eradicate them. The QUIN acid produced by immunity can through some other reactions influence glutamate levels (references in that previous post). Another contributing factor can be the role of astrocyte cells who can be infected by EBV et al. (again confirmed presence in these cell types in general). These cells provide the services to neurons (nourishment, support, protection) and are responsible for cleaning-up the extracellular glutamate which could already harm the system. If these cells are under attack or impaired or mutated they do not fulfil this role well and glutamate levels in extracellular matrix is the result with all those negative effects.

This is the story of glutamate role in ALS. However it is probably not the only factor playing significant role in muscle twitches or fasciculations. Another possibly contributing factor explained more here is the suspected disbalance in the Calcium/Magnesium ratio (abundance of calcium; insufficient magnesium). This is also the reason why some ALS patients do benefit from supplementing something as simple as magnesium, one example for all is Bill Riffle but also science noticed such simple supplementation can help – one article referred from here.

 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  

Why ALS hits more sporting people including professionals?

The answer is simple. ALS is syndrome of immune system, despite it is pretty hidden property and can be specific to sub-components of immunity only. The fact that many people can do professional sport does not mean they do not have hidden problems. Demanding activity gradually lowers immunity and what is even worse – serious injury can cause another drop in immune system activity. The stress hormones have such effect on immunity and this situation can be already beginning of ALS development. Even drugs can cause hormonal disbalance and direct the organism into same problems. There are known stories of football players which support this theory. It is all logical and fits the overall ALS puzzle I am trying to explain.

 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  

 

Again: Is there any hope for ALS patients?

Yes there is but a new problem arised – how to convince thousands of people that they can do something right now and believe it can be worth all the effort while not having any guaranteed result.

 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  

 

Again: Is ALS really incurable?

It is curable and time will prove it. Big factor is time which is not surprising – the later people start with treatment the harder to achieve good results. Anyway everyone can attempt for it regardless his condition.

Why should I trust in this?

Because the legend of all legends, Edgar Cayce stated that indirectly and because I am giving you many linked scientific traces indicating that humans are almost there. Because you want to stop the disease, recover and stay on this world longer as you have some unfinished job here for sure. Please explore the whole website and spend some time with it, you can start for example with this post or jump into ALSSTAR right away.

 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  

The last section is the experimental and therefore obviously to certain extent speculative source of information giving afflicted persons and their families opportunity to act immediately. Instead of “passive waiting mode” they can rather switch to “active waiting mode“. Waiting means waiting on positive outcome of ALS research. It is everyone´s call but life with ALS does not offer rich options and time is the ultimate factor. It will not be for everyone as it requires certain qualities which not that many people posses. There is nothing guaranteed, there is no scientific evidence (how could be?) and it requires lot of effort, iron discipline and some small investments (to buy couple of things; nothing is for free and it never was). After all it is an experiment – but very accessible & affordable for everyone. There is no business aspect or interest, it all is only about providing information for free here on this website and experimenting together in a community driven fashion.

ALS FAQ 2021 - Experimental Ground

Conclusions and experiments suggested as per the experimental theory.

What is ALS experimental theory?

This is a theory describing ALS. Everyone, even the most sceptical and most critical person, should be concerned because the theory absorbed practically all ALS related findings which science is unable to put in one logical context, and suggested the possible links among them. This FAQ and website describes this theory from more angles – please explore the posts if you are interested in this.

  • Genetic predispositions importance
  • Familial vs sporadic form relationship
  • Role of heavy metals
  • Role of repeated infections
  • Role of chronic psychic stress
  • Role of demanding physical activity
  • Role of heightened glutamate
  • Role of oxidative stress
  • Lyme to ALS link explained
  • Muscle twitches explained
  • . . .

ALS XT is a full package and is made available to everyone for free. Thanks to sponsors from ALSR (ALS Resistance). Core human & side-interest free power! No Limits.

 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  

How should ALS patient try to get over the deadly prognosis?

Person who has ALS diagnosis is under big pressure of the disease but also by pressure of his own psychic and then also by the damaging public opinion (poor person, has no chance … ). This is deadly spirale and needs to be escaped from. There is only one way out of this.

In general human being needs to be only given REAL HOPE, non-zero chance and some supportive information how things could happen and how they can be fixed or at least neutralized. This is what this whole website is about, it brings hope, explanations and actions, not prayers and not curses. It describes ALS in revolutionary way as part of ALS Experimental Theory (ALS XT) and suggests application of experimental and heuristic ALSSTAR (ALS STabilizing And Recovery) algorithm. However no warranty is provided as nothing is being sold here. This is open-source theory published for everyone under public domain license.

 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  

 

What is ALS 1KD Challenge?

It is a program designed for all ALS patients but especially for those new. Why? Because these can prove its value in fastest way and help their fellows who are already in advanced stage and for which it could be more risky.  In United States every 90 min. someone hears the diagnosis. My wish is every such new patient gets this information as soon as possible. The protocol will prove its value.

It consists of taking part in 1000 days long (1KD) protocol which has been designed to stop the disease progression. For those who are interested in this I suggest reading related post and getting familiar with all the scientific findings this work is based on. If your first impression was “pseudoscience” then you should be fair and start reading tens of articles I referred and cited. If this is pseudoscience then there is no science and only pseudoscience exists.

 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  

What is ALSSTAR algorithm?

It is set of instructions to follow but there are no precise details added – it is written for humans which are prepared to start experimenting and who can take some risk associated. All the information provided here should equip them with already non-trivial knowledge about their nasty health issue. Once one at least suspects what all can be wrong and what steps need to be executed in which order only one question makes sense:

How should I start with this? 

ALSSTAR (ALS*) is the answer together with ALS 1KD CHALLENGE.

 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  

Why ALS AWARENESS is important?

There is obvious answer to this question – humans should be aware of this disease and what it can do to them. But this aspect was heavilly addressed in past few decades. People know ALS but people are afraid of it and do not see any hope. The new objective is to avoid threatening society with the danger of ALS and focus on spreading promising news and start finally delivering. I have contributed here with my video.

Also for me, raising only awareness is not enough, this is just plan B. My plan A is to explain ALS, despite perhaps still partially. I wanted to identify weak spots and exploit them. Next step is sharing the information freely and give some instructions on what can be done. It is about beating the disease and I know someone strong will beat it officially soon. My website already has enough encouraging information but I am adding more and more. Big problem with ALS is explained here.

 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  

 

What ALS community needs right now?

Due to the experimental nature of information provided here the ALS community needs volunteers who will leverage it. The world needs test pilots. Check ALS* algorithm. Healthcare system help would be nice, but they will not trust this theory. Per aspera ad astra.

 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  

 

Ask yourself: How would you actually imagine the cure for ALS?

Now I am asking you, the reader. How do you imagine the cure once found one day?

Is that some drug? You swallow it and after some time motor neurons get protected from that unknown damage and person is saved? Weird but fine.

Or is that some gene therapy applied to your genetics? (trillions of cells). Well OK, it is imagination, so somehow this happens and problems in central nervous system disappear, because the cells there start function well without any unpredictable side effects. Nice.

Or is that some machine like those from science fiction movies? Some bed where patient is put and it scans him – diagnostics immediatelly reports “ALS detected” and it follows with “Starting with reconstruction of motor neurons … Please wait” message and after hour or two a final “Completed” message is received from the miraculous system. This is also nice but we just started selling first tickets to the space, we do not have any real space vessel on which such equipment usually is, we hardly get something on the orbit using those carrier rockets, which are exploding from time to time. No warp engine etc.

Now I will tell you my imagination which I had before I started with this all.

My imagination was that humans badly interpret their own findings. Humans say there are no microbial aspects despite repeated infections are reported as a risk factor. Humans know intensive contact with heavy metals is known risk factor but they do not consider that important. My imagination was humans are sinners who often don´t collaborate without side interests which can shift science to suboptimal directions heavilly impacting probability of success. I know humans and my imagination was about human mistakes – hardly to believe they can be repeated for several decades but still I suspected human factor. In my imagination the success was represented in finding & correcting human mistakes. And this is what I have attempted for. The result is this website, perhaps it can make some difference.

 

Please note this answer is part of FAQ page containing 45 amyotrophic lateral sclerosis (ALS) related questions. It can be also viewed as single post which may look little bit odd. For example search engine like Google or Bing can direct you at such view. If you are missing a context check the parent page and perhaps also other questions. Do you know ALS Experimental Theory? Are you aware of ALS 1KD Challenge?  

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